Beyond Autonomy: Limits and Alternatives to Informed Consent in Research Ethics and Law

Medical Law

Beyond Autonomy: Limits and Alternatives to Informed Consent in Research Ethics and Law

Edited by David G. Kirchhoffer · Bernadette J. Richards
Cambridge University Press July 2021

Specifications

ISBN-13
9781108741309
Publisher
Cambridge University Press
Publication
July 2021
Format
Paperback
Jurisdiction
U.K. ? Countri(es) for reference only

Also available as

Hardback

Details

Respect for autonomy has become a fundamental principle in human research ethics. Nonetheless, this principle and the associated process of obtaining informed consent do have limitations. This can lead to some groups, many of them vulnerable, being left understudied. This book considers these limitations and contributes through legal and philosophical analyses to the search for viable approaches to human research ethics. It explores the limitations of respect for autonomy and informed consent both in law and through the examination of cases where autonomy is lacking (infants), diminished (addicts), and compromised (low socio-economic status). It examines alternative and complementary concepts to overcome the limits of respect for autonomy, including beneficence, dignity, virtue, solidarity, non-exploitation, vulnerability and self-ownership. It takes seriously the importance of human relationality and community in qualifying, tempering and complementing autonomy to achieve the ultimate end of human research - the good of humankind.

Table of Contents

Introduction. The limits of respect for autonomy
David G. Kirchhoffer
Part I. Exploring Problems of Respect for Autonomy in Bioethics, Law and Society:
1. Autonomy and the law: widely used, poorly defined
Bernadette J. Richards
2. Lack of autonomy: debates concerning research involving children
Thomas H. Murray
3. Diminished autonomy: consent and chronic addiction
Steve Matthews and Jeanette Kennett
4. Compromised autonomy: social inequality and issues of status and control
S. Stewart Braun
Part II. The Search for Alternative or Complementary Concepts Surrounding Autonomy:
5. Self-ownership in research ethics
Garrett Cullity
6. Beneficence in research ethics
David G. Kirchhoffer, Christi D. Favor and Christopher D. Cordner
7. Dignity, being and becoming in research ethics
David G. Kirchhoffer
8. Virtues in research ethics: developing an empirically-informed account of virtues in biomedical research practice
Justin Oakley
Part III. Beyond Autonomy: Turning to the Community to Protect the Individual:
9. Duties of shared membership in research ethics
José Miola
10. Engaging communities in human research in the Global South
Anita Ho
11. Reducing shared vulnerabilities to data misuse
Wendy Rogers
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