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Ethical and Legal Requirements of Transnational Genetic Research

Ethical and Legal Requirements of Transnational Genetic Research

Name: Ethical and Legal Requirements of Transnational Genetic Research
Brand: Hart Publishing
SKU: 9781849461283
Price: 1071.85 HKD
Availability: OutOfStock
Author: Nikolaus Forgo; Regine Kollek; Marian Arning; Tina Kruegel; Imme Petersen
ISBN: 9781849461283

Edited by Nikolaus Forgo · Regine Kollek · Marian Arning · Tina Kruegel · Imme Petersen

Hart Publishing November 2010

Specifications

ISBN-13: 9781849461283
Publisher: Hart Publishing
Publication: November 2010
Format: Hardback
Jurisdiction: U.K. ? Countri(es) for reference only

Details

With the advancement of molecular technologies, genetic research has made enormous progress over the last decade. To facilitate genetic research, the collection, integration and exploitation of data are prerequisite. Genetic data, however, providing information not only about the person herself but also about her family, parentage and ethnic decent, are regarded as both the most valuable and vulnerable data, worthy of protection by aall and any means.

On the other hand, clinical research makes it necessary to disclose and exchange genetic data. In order to resolve this dilemma ethical and legal requirements must be observed. To this end, this book provides for an in-depth overview of the respective requirements. In its legal part focus is laid on the European Data Protection Directive 95/46/EC and its impact on Trans-European Research Projects and other genetic research networks

About the Author

Nikolaus Forgó is professor of law at the University of Hannover and a specialist in the field of data protection and data security.
Regine Kollek is professor for technology assessment in the field of biotechnology at the University of Hamburg, and author of numerous relevant publications.
Dr Marian Arning, Dr Tina Kruegel and Dr Imme Petersen are research fellows at the Universities of Hannover and Hamburg.