Human Germline Genome Modification and the Right to Science: A Comparative Study of National Laws and Policies

Medical Law

Human Germline Genome Modification and the Right to Science: A Comparative Study of National Laws and Policies

Edited by Andrea Boggio · Cesare P.R. Romano · Jessica Almqvist
Cambridge University Press June 2022

Specifications

ISBN-13
9781108718448
Publisher
Cambridge University Press
Publication
June 2022
Format
Paperback
Jurisdiction
U.K. ? Countri(es) for reference only

Also available as

Hardback

Details

The advent of the CRISPR/Cas9 class of genome editing tools is transforming not just science and medicine, but also law. When the genome of germline cells is modified, the modifications could be inherited, with far-reaching effects in time and scale. Legal systems are struggling with keeping up with the CRISPR revolution and both lawyers and scientists are often confused about existing regulations. This book contains an analysis of the national regulatory framework in eighteen selected countries. Written by national legal experts, it includes all major players in bioengineering, plus an analysis of the emerging international standards and a discussion of how international human rights standards should inform national and international regulatory frameworks. The authors propose a set of principles for the regulation of germline engineering, based on international human rights law, that can be the foundation for regulating heritable gene editing both at the level of countries as well as globally.

Table of Contents

1. Introduction
Andrea Boggio,Cesare P. R. Romano and Jessica Almqvist
2. The governance of human (germline) genome modification at the international and transnational level
Part I. North America:
3. The regulation of human germline genome modification in Canada
Erika Kleiderman
4. The regulation of human germline genome modification in the United States
Kerry Lynn Macintosh
5. The regulation of human germline genome modification in Mexico
María de Jesús Medina Arellano
Part II. Europe:
6. The regulation of human germline genome modification in Europe
Jessica Almqvist and Cesare P. R. Romano
7. The regulation of human germline genome modification in the United Kingdom
James Lawford Davies
8. The regulation of human germline genome modification in Germany
Timo Faltus
9. The regulation of human germline genome modification in Belgium
Guido Pennings
10. The regulation of human germline genome modification in Sweden
Santa Slokenberga and Heidi Carmen Howard
11. The regulation of human germline genome modification in the Netherlands
Britta van Beers, Charlotte de Kluiver and Rick Maas
12. The regulation of human germline genome modification in Italy
Ludovica Poli
13. The regulation of human germline genome modification in Spain
Iñigo de Miguel Beriain and Carlos María Romeo Casabona
14. The regulation of human germline genome modification in France
Alessandro Blasimme, Dorothée Caminiti and Effy Vayena
15. The regulation of human germline genome modification in Switzerland
Alessandro Blasimme, Dorothée Caminiti and Effy Vayena
Part III. Asia:
16. The regulation of human germline genome modification in Japan
Tetsuya Ishii
17. The regulation of human germline genome modification in The People's Republic of China
Lingqiao Song and Rosario Isasi
18. The regulation of human germline genome modification in The Republic of Korea
Hannah Kim and Yann Joly
19. The regulation of human germline genome modification in Singapore
Calvin W. L. Ho
Part IV. Other OECD Countries:
20. The regulation of human germline genome modification in Australia
Dianne Nicol
21. The regulation of human germline genome modification in Israel
Vardit Ravitsky and Gali Ben-Or
22. Towards a human rights framework for the regulation of human germline genome modification
Andrea Boggio, Cesare P. R. Romano and Jessica Almqvisy
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