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Buying Your Self on the Internet: Wrap Contracts and Personal Genomics

Buying Your Self on the Internet: Wrap Contracts and Personal Genomics

Buying Your Self on the Internet: Wrap Contracts and Personal Genomics

Author: Andelka Phillips
Publisher: Edinburgh University Press
ISBN: 9781474422598

Published In: August 2019
Format: Hardback
Jurisdiction: Scotland ? Disclaimer:
Countri(es) stated herein are used as reference only
Paperback Edition ISBN: 9781474484305

HKD 1,345.50

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Description
Contents

Details

Examines the direct-to-consumer genetic testing industry's controversial use of 'wrap' contracts This book provides an introduction to the world of personal genomics and examines the rise of the direct-to-consumer genetic testing industry (DTC) and its use of 'wrap' contracts. It explores the different types of tests available and the issues that this industry raises for law and society.

Table of Statutes

Table of Cases

1. Direct-To-Consumer Genetic Testing and Regulating Disruptive Technology

Introduction

Aims of This Book

Guidance for Readers

What Is Personal Genomics or Direct-to-Consumer Genetic Testing?

Summary of How DTC Services Operate

Bringing Disruptive Technology to the Public

Data Deluge

Methodology

How Should the DTC Industry Be Regulated? The Policy Response to Date

Sources of Law Which Might Be Applicable to DTC in the UK and EU

What Can Go Wrong?

Conclusion

2. The Science behind that Click of the Mouse

Introduction

The Nature of Genetic Information and Genetic Exceptionalism

Recent Advances in Genetic and Genomic Science

Conclusion

3. The Rise of Personal Genomics – Overview of the Direct-to-Consumer Genetic Testing Industry

Introduction

Overview of the DTC Industry

Health Tests

Ancestry Testing

Genetic Relatedness Testing

Testing for Athletic Ability

Testing for Child Talent and Testing of Children

Surreptitious (‘Infidelity’) Testing

Match Making Testing

Conclusion

4. Privacy, Data Protection, and Security in the Context of Direct-to-Consumer Genetic Testing Services

Introduction

General Data Protection Regulation (GDPR)

The UK’s Data Protection Legislation

Privacy Policies and Notices and Website Design

US Privacy Law

Canadian Genetic Privacy Law

Secondary Use of Genetic Databases – the Golden State Killer and Beyond

Indigenous Peoples and Data Sovereignty

Privacy Best Practices for Consumer Genetics Testing Services (July 2018)

Conclusion

5. Clicking Away Rights in DNA: A Review of DTC Contracts

Introduction

Challenging Unfair Terms in DTC Contracts

Conclusion

6. Future Directions for DTC Governance

Note for Readers Interested in Purchasing DTC Tests

Suggestions for Reform

Final Thoughts

Bibliography

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