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Sharing Linked Data for Health Research: Toward Better Decision Making

Sharing Linked Data for Health Research: Toward Better Decision Making

Sharing Linked Data for Health Research: Toward Better Decision Making

Author: Carolyn Adams; Judy Allen; Felicity Flack
Publisher: Cambridge University Press
ISBN: 9781108445368

Published In: February 2025
Format: Paperback
Jurisdiction: U.K. ? Disclaimer:
Countri(es) stated herein are used as reference only
Hardback Edition ISBN: 9781108426640

List Price: AU$70.00

AU$67.90 Save AU$2.10 (3%)

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Description
Contents

Details

Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address “wicked problems” in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities.

Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise.

Part I. Context for decision making

1. Research using linked data

2. Individual, collective, and public interests

3. Social licence

Part II. Frameworks for decision making

4. Human rights

5. Research ethics

6. Law

Part III. Practice and process of decision making

7. Existing practice and processes

8. Better practice and processes

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