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Ethical and Legal Requirements of Transnational Genetic Research

Ethical and Legal Requirements of Transnational Genetic Research

Ethical and Legal Requirements of Transnational Genetic Research

Author: Nikolaus Forgo; Regine Kollek; Marian Arning; Tina Kruegel; Imme Petersen
Publisher: Hart Publishing
ISBN: 9781849461283
Published In: November 2010
Format: Hardback
Jurisdiction: U.K. ? Disclaimer:
Countri(es) stated herein are used as reference only

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With the advancement of molecular technologies, genetic research has made enormous progress over the last decade. To facilitate genetic research, the collection, integration and exploitation of data are prerequisite. Genetic data, however, providing information not only about the person herself but also about her family, parentage and ethnic decent, are regarded as both the most valuable and vulnerable data, worthy of protection by aall and any means.

On the other hand, clinical research makes it necessary to disclose and exchange genetic data. In order to resolve this dilemma ethical and legal requirements must be observed. To this end, this book provides for an in-depth overview of the respective requirements. In its legal part focus is laid on the European Data Protection Directive 95/46/EC and its impact on Trans-European Research Projects and other genetic research networks

Nikolaus Forgó is professor of law at the University of Hannover and a specialist in the field of data protection and data security.
Regine Kollek is professor for technology assessment in the field of biotechnology at the University of Hamburg, and author of numerous relevant publications.
Dr Marian Arning, Dr Tina Kruegel and Dr Imme Petersen are research fellows at the Universities of Hannover and Hamburg.

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